Research

Research Projects

Kick-off Project / Staged Genome Study

June 01, 2019

We are excited to announce our first Research project. We are raising money to fund a double blind, staged Genome study. This study will start with Systemic Mastocytosis, Cutaneous Mastocytosis…

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Idiopathic MCAS Survey

This survey is restricted to US patients who have no elevated mediators including Tryptase. Go to survey

Our Efforts

We would like patients to know that we are currently working with researchers and physicians on new substantial changes in treatment. This information is confidential and we are unable to provide details at this time. We can't wait to shout from the rooftops when we are able to!

We give support through connections, partnerships with biotech and pharma, grant support and anything else they need to get the wheels turning faster for patient care.

Please support our efforts through a donation or running a fundraiser. Know that we are working hard on your behalf.